Tuesday, February 22, 2011

Tired all the time

I must be in some type of flare up.  Yesterday my doc did mention that the "new" formulation of one of my meds was causing alot of problems for a ton of people.  Meaning that the med wasn't working as well as it used too due to the change.  I was surprised I hadn't even thought of that being a reason for my increased pain in the last couple of months.

I mean since I lost my job I haven't done much more than sit on the couch and search for work or read so my pain should be less right??  But it's not it has actually been getting worse.  I figured at my next appointment I would see the doc instead of the pa so we could increase my dosage but now it could be from the new formula and not having my body getting used to the meds.  That would mean a new med completely and since I am allergic to morphine I am kinda limited.  I want to stay on  the same med so that in a few years I can change to the higher power ones.  I don't want to be stuck at 40-50 with no new choice on pain meds.  I started on these too young due to the pain starting to want to be stuck old and in pain.

And I just couldn't stay awake today.  Got the kids off too school, looked for work I could try to handle, contacted the staffing agency to see if they had anything and fell asleep reading my book.  Accidentally slept for 3 hours.  I never sleep that long at all unless its night time and time too sleep for 8 hours.  It's nuts there was actually things I wanted to get done today but my body decided that it was not going to happen.

Oh well maybe tomorrow I can get done some of the stuff I have been putting off forever.

Monday, February 21, 2011

Doc Appt Today

I had an appointment with the pain management doctors office.  Probably a good things although it was only with the PA and for a med refill.  I got to complain about calling in to refill my meds and the front office giving me shit acting like I am filling my meds early when I am not.  When I am calling on day 30 when I am given a 30 day prescription it is because I am out and need more of my meds.  Yes I take highly addictive meds but I am not taking more than prescribed. 


I really hate being treated like I am an addict.  I am not I only take what is prescribed.  So when my last med was given to me on the 23rd and the month had 31 days in it I will need to have my meds on the 22nd or I will be out of meds to take.  And if it is extremely important for me to always take my med on time do not get mad at me when my pain is out of control since you are keeping me from doing that.

Also weird is last night I am laying in bed reading and my arms start itching.  Next thing I know I have hives from my hands to my elbows.  The PA thinks I had a reaction to something touching my skin.  Strange as all I was doing was laying in bed and the only thing my skin reacts to like that is Lavender.  Which sucks to be allergic too since it is in almost everything.  So all the bedding is being washed today to make it safe and I am taking allergy pills and putting a benedryl cream on my skin.  Hope it clears up soon the itching is driving me nuts and I don't want to spend even more money on another doctor since I am still out of work.

Sunday, February 20, 2011

New Blog ...Fun!

Well since I figured I could start a new blog about what my life is like as a pain patient and everything else I should give a bit of background.

Back in 2006 I think it was I was diagnosed with Fibromyalgia.  I don't know if I believe I have it or not.  At the time I had KP insurance and went in for constant pain in my hip.  After many visits and being proscribed anti-inflamitories and vicodin I brought the information for Fibro to my doctor and she agreed that it was what I had.  

I have changed insurance since then and seen other doctors.  I have also received new diagnosis'.  Now I have multiple diagnosis but the Fibro still sticks.  My sister is also ill with many of the same symptoms and we both have a genetic marker for Anklosing Spondilosis. (sp?)  She has been told she has it.  I have been told I do not have enough damage to say I have it yet.

I do have myofacial pain disorder, degenerative disc disease, carpal tunnel syndrome, tarsal tunnel syndrome, spondilosis of the spine, problems with my SI joints, and arthritis in the neck and back.  So needless to say I am in pain all the time and it affects all portions of my life.  I recently lost my job due to lay offs and have been trying to find work I can physically handle and having a hard time of it.

With this blog I plan to talk of Chronic pain and how it is affecting me and my life.  There may be whining and venting but I will try not to whine much.  I just want to put my experience out there so others going through the same if they come across this will see that they are not alone.  Maybe someone will see what i post and be able to point me to an avenue I haven't tried to get help dealing with the pain.  If nothing else the writing will help me to deal with the depression that comes with the territory.

Health and low pain to all!